TOP TIPS FOR COMPLETING THE SURVEY
What is the Survey about?
We want to know: What are the important questions you have about PCOS that scientists should be trying to answer?
What types of Unanswered Questions?
The unanswered questions could be about anything about PCOS that is important for you to know. Some people have suggested topics like how best to manage PCOS symptoms, how I can find reliable information, who should be providing my healthcare for PCOS but these are just examples. It may be related to something you, your child/partner who lives with PCOS, or the patients with PCOS that you work with, are currently experiencing. It may be something you wish you had known earlier, something you are unsure about in the future or something you wish was generally known about. Everyone will have their own unanswered questions so it can be about anything related to PCOS that you think is important.
How do I fill out the survey?
The first part of the survey is about agreeing that you have read the information sheet (link) and that you are happy to take part. Then the survey will ask you for your unanswered questions – you can have up to 5 questions so before you start you might want to think about what are the important questions about PCOS for you.
How long does it take?
This will depend on how many questions you want to send us but around 10-15 minutes
Do I have to do it in one go? Does the form save?
The survey will save your answers once you have got past the first page – you just need to click on the link again and your previous answers will be there.
Do I have to come up with 5 questions?
No - you can ask up to five questions but you can submit the form with one or more questions.
Can I print my answers if I want to?
Yes – once you have completed the survey and submitted it you will see a “response summary” which you can download as a PDF
English is not my first language - can I see the survey in a different language?
Yes – there are lots of languages and the survey can be translated by each person into a preferred language. If you “right click” on any piece of the text and in the drop down menu there is “translate into English” - click on that - then in the right hand corner three dots will appear - click on these and request the document be translated into a different language from the drop down list.
Could I complete a paper version of the survey?
If you email [email protected] the team will be happy to send you a paper copy of the survey and information on how to return it.
What are you going to do with my answers?
From all the responses we receive, we will turn the ideas and suggestions into summary questions that research can answer and these will be included in a second survey later in the year, to identify the top 10 most important. All the questions/ideas you submit will be made available on the JLA website but will not be connected to the people that submitted them. (For more information please see information sheet)
I know other people who would like to fill out the survey - can I forward the link to them?
Yes please! We are keen that the survey gets to as many people with experience of PCOS as possible, so please feel free to send the link on to them.
We want to know: What are the important questions you have about PCOS that scientists should be trying to answer?
What types of Unanswered Questions?
The unanswered questions could be about anything about PCOS that is important for you to know. Some people have suggested topics like how best to manage PCOS symptoms, how I can find reliable information, who should be providing my healthcare for PCOS but these are just examples. It may be related to something you, your child/partner who lives with PCOS, or the patients with PCOS that you work with, are currently experiencing. It may be something you wish you had known earlier, something you are unsure about in the future or something you wish was generally known about. Everyone will have their own unanswered questions so it can be about anything related to PCOS that you think is important.
How do I fill out the survey?
The first part of the survey is about agreeing that you have read the information sheet (link) and that you are happy to take part. Then the survey will ask you for your unanswered questions – you can have up to 5 questions so before you start you might want to think about what are the important questions about PCOS for you.
How long does it take?
This will depend on how many questions you want to send us but around 10-15 minutes
Do I have to do it in one go? Does the form save?
The survey will save your answers once you have got past the first page – you just need to click on the link again and your previous answers will be there.
Do I have to come up with 5 questions?
No - you can ask up to five questions but you can submit the form with one or more questions.
Can I print my answers if I want to?
Yes – once you have completed the survey and submitted it you will see a “response summary” which you can download as a PDF
English is not my first language - can I see the survey in a different language?
Yes – there are lots of languages and the survey can be translated by each person into a preferred language. If you “right click” on any piece of the text and in the drop down menu there is “translate into English” - click on that - then in the right hand corner three dots will appear - click on these and request the document be translated into a different language from the drop down list.
Could I complete a paper version of the survey?
If you email [email protected] the team will be happy to send you a paper copy of the survey and information on how to return it.
What are you going to do with my answers?
From all the responses we receive, we will turn the ideas and suggestions into summary questions that research can answer and these will be included in a second survey later in the year, to identify the top 10 most important. All the questions/ideas you submit will be made available on the JLA website but will not be connected to the people that submitted them. (For more information please see information sheet)
I know other people who would like to fill out the survey - can I forward the link to them?
Yes please! We are keen that the survey gets to as many people with experience of PCOS as possible, so please feel free to send the link on to them.