Shaping the future of pcos research IN THE UK

We’re working to identify the top 10 unanswered questions about PCOS to guide future research — and we need your help.

Led by Cardiff University and UK charity Verity and together with a diverse team of patients, professionals and patient organisations (Cysters, Endo and PCOS Society, University of Glasgow, Fair Treatment for the Women of Wales (FTWW) and PCOS Vitality), this initiative brings together patients, families, and healthcare professionals in a process where all voices have equal value. The initial survey gathering a list of the unanswered questions has now closed, and the team are working through the data to group them into themes.  In July we are aiming to circulate the follow-up survey where we ask you to rank these research questions in order of priority.

Whether you have PCOS, love someone that has the condition or you are a healthcare practitioner across any discipline, we want to hear from you. By participating, you’ll help ensure future PCOS research focuses on what’s most important to people living with and managing the condition in the UK.
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If you would like to be informed of the next survey, please sign up to our email newsletter.

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We will only contact you with news about this project, including a follow up-survey, opportunity to participate in a final prioritisation workshop and with the final shortlist of research priorities.