Share your experience with PCOS and help Parliament understand where the system is failing and how it can be improved.
WHY YOUR VOICE MATTERS
Too many Black and Asian people with Polycystic Ovary Syndrome (PCOS) in the UK go unheard, remain undiagnosed, and misunderstood. From delays in diagnosis to poor treatment options and symptoms being dismissed altogether, the stories of those from ethnic minority backgrounds are often left out of the national conversation around women’s health.
This is your chance to change that. The All Party Parliamentary Group (APPG) for PCOS is running a Parliamentary Inquiry into PCOS diagnosis and care, which will be published in September 2025. This inquiry will investigate the current standards of diagnosis, treatment, GP knowledge, and support services available to people living with PCOS. It aims to understand what’s working and more importantly, what isn’t. But for the inquiry to lead to real, inclusive change, it needs to be informed by everyone’s lived experience, especially the voices of Black, South Asian, Arab, and other underrepresented communities, whose needs are too often ignored in healthcare.
By taking these two, anonymous surveys - one on diagnosis and one on management. you are helping to build evidence that can’t be overlooked, evidence that will be directly submitted to Parliament. You are showing policymakers and the NHS that one-size-fits-all care simply doesn't work. You're pushing for better training, faster diagnoses, culturally aware treatment options, and a future where racial disparities in PCOS care are no longer the norm.
Your voice matters because your experience is real. Now is the time to make it count.
This is your chance to change that. The All Party Parliamentary Group (APPG) for PCOS is running a Parliamentary Inquiry into PCOS diagnosis and care, which will be published in September 2025. This inquiry will investigate the current standards of diagnosis, treatment, GP knowledge, and support services available to people living with PCOS. It aims to understand what’s working and more importantly, what isn’t. But for the inquiry to lead to real, inclusive change, it needs to be informed by everyone’s lived experience, especially the voices of Black, South Asian, Arab, and other underrepresented communities, whose needs are too often ignored in healthcare.
By taking these two, anonymous surveys - one on diagnosis and one on management. you are helping to build evidence that can’t be overlooked, evidence that will be directly submitted to Parliament. You are showing policymakers and the NHS that one-size-fits-all care simply doesn't work. You're pushing for better training, faster diagnoses, culturally aware treatment options, and a future where racial disparities in PCOS care are no longer the norm.
Your voice matters because your experience is real. Now is the time to make it count.
SHARE YOUR STORY: CASE STUDIES FOR CHANGE
Alongside survey responses, we are also collecting personal stories from people living with PCOS, especially those from Black, South Asian, Arab, and other ethnic minority communities to be used as powerful case studies in the Parliamentary Inquiry. Your story can help humanise the statistics and show the real impact of PCOS when care is delayed, symptoms are dismissed, or cultural needs are ignored. Whether you’ve faced medical gaslighting, struggled to get a diagnosis, experienced fertility issues, or found strength in a positive care experience.
Your voice can help shape better understanding and better policies. These case studies may be used (with your permission) in written evidence submitted to Parliament, shared anonymously in campaign materials, or potentially presented to MPs and health leaders to push for meaningful change.
If you feel comfortable sharing your experience, please use the link below to tell us more. You can remain anonymous, and you’ll be contacted before anything is published or used publicly. Because your lived reality is evidence and stories like yours are exactly what this system needs to hear.
Your voice can help shape better understanding and better policies. These case studies may be used (with your permission) in written evidence submitted to Parliament, shared anonymously in campaign materials, or potentially presented to MPs and health leaders to push for meaningful change.
If you feel comfortable sharing your experience, please use the link below to tell us more. You can remain anonymous, and you’ll be contacted before anything is published or used publicly. Because your lived reality is evidence and stories like yours are exactly what this system needs to hear.
